Reading and resources

Here’s the reading list to help prepare for the 2018 retreat. It will be a working retreat. While it’s not necessary to read all the items listed here, the first reads are essential, and other papers provide important background reading.

Recommended first reads

Darlington Statement – the statement we agreed in 2017.

Malta statement – the statement of the Third International Intersex Forum in 2013.

UN Factsheet on intersex

UN joint statement – an interagency statement published for Intersex Awareness Day, 2016

Demographics – a short summary of a 2015 Australian research study involving 272 people born with atypical sex characteristics

Specialist peer support

National LGBTI Health Alliance, O’Donnell M, Taylor B. Working therapeutically with LGBTI clients: a practice wisdom resource. Sydney: National LGBTI Health Alliance; 2014

Narrative Inquiry in Bioethics: Intersex voices, 2016 – a collection of first-person narratives

Specialist legal and law reform

Re: Carla (Medical procedure) [2016] FamCA 7 (20 January 2016) Family Court case

Re: Kaitlin [2017] FamCA 83 (22 February 2017) Family Court case

Briffa T. Intersex surgery disregards children’s human rights. Nature. 2004;428:695.

Carpenter M. The “Normalization” of Intersex Bodies and “Othering” of Intersex Identities in Australia. Bioethical Inquiry. 2018;1–9.

Community Affairs References Committee, Senate, Australia. Involuntary or coerced sterilisation of intersex people in Australia. Canberra: Community Affairs References Committee; 2013.

Attorney General’s Department, Australia. Australian Government response to the Senate Community Affairs References Committee reports on involuntary or coerced sterilisation. Attorney General’s Department; 2015 – this response passed responsibility to States and Territories, and recommended flawed and ignored State guidelines.

Human Rights Commission, New Zealand. Intersex Roundtable Report 2016 The practice of genital normalisation on intersex children in Aotearoa New Zealand. 2016 Nov.

Maltese GIGESC law – this law, passed in 2015, protects children from unnecessary/harmful modifications to their sex characteristics.

Yogyakarta Principles. The Yogyakarta Principles. Principles on the application of international human rights law in relation to sexual orientation and gender identity. 2007.

Yogyakarta Principles. The Yogyakarta Principles Plus 10: Additional Principles and State Obligations on the Application of International Human Rights Law in Relation to Sexual Orientation, Gender Identity, Gender Expression and Sex Characteristics, to Complement the Yogyakarta Principles. 2017.

Long reads on international human rights and health

Asia Pacific Forum of National Human Rights Institutions. Promoting and Protecting Human Rights in relation to Sexual Orientation, Gender Identity and Sex Characteristics. Sydney, Australia; 2016

Cabral M, Carpenter M, editors. Intersex Issues in the International Classification of Diseases: a revision 2014

Carpenter M, Organisation Intersex International Australia. Submission on the Review of Part B of the Ethical Guidelines for the Use of Assisted Reproductive Technology in Clinical Practice and Research, 2007. Sydney: Organisation Intersex International Australia; 2014 Apr.

Clinical articles

Note that Lee and others contains a neonate genital surgery image. Please also note that these papers underpin the medical interventions in Re Carla.

Hughes IA et al. Consensus statement on management of intersex disorders. Archives of Disease in Childhood. 2006;91(7):554–63.

Lee PA, Nordenström A, Houk CP, Ahmed SF, Auchus R, Baratz A, et al. Global Disorders of Sex Development Update since 2006: Perceptions, Approach and Care. Hormone Research in Paediatrics. 2016;85(3).